In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by novelist and disability advocate Sabina Nordqvist. Sabina discusses her personal 12-year battle with idiopathic intracranial hypertension (IIH), POTS, and Ehlers-Danlos syndrome. She shares the profound impact of misdiagnosis, the importance of self-advocacy, and how her experiences in support groups led her to write a novel called It's All in Your Head that puts disabled characters front and center. Dr. Peters is then joined by Dr. Jeremy Cutsforth-Gregory, an Assistant Professor of Neurology at Mayo Clinic in Rochester, Minnesota, working in the Division of Neurologic Education. Dr. Cutsforth-Gregory explains cerebrospinal fluid and IIH, highlighting the treatments that are available and where research is going next.
Additional Resources
Sabina Nordqvist- It's All in Your Head
Understanding the Mysteries of POTS and Other Autonomic Disorders
A Swimmer Returns to the Pool After Ehlers-Danlos Syndrome Diagnosis
Brain & Life Podcast Episodes on Similar Topics
Parenting and Writing While Disabled with Jessica Slice
Outdoors Woman Crystal Gail Welcome on Nature and Chronic Pain
Author Samantha Lee Schmall on Life Beyond the Shunt
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Guests: Sabina Nordqvist @nordqvistbooks; Dr. Cutsforth-Gregory @mayoclinic
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD