This episode features Jodie Crooks (Marie Curie, London, UK) and Dr Briony Hudson (Marie Curie, London, UK; Marie Curie Palliative Care Research Department, University College London, London, UK).
What is already known about the topic?
- Research into palliative care for people experiencing homelessness is complex and requires input from people with lived experience.
- There is a dearth of evidence and/or guidance in how to support researchers to involve people with lived experience of homelessness in palliative care research.
What this paper adds?
- Co-production of palliative and end-of-life-care research with people with lived experience of homelessness needs to be transparent, prioritise building rapport, be trauma-informed and person-centred.
- Reimbursement should always be offered to co-producers. The method of reimbursement should consider the context of involvement (i.e. the individual’s circumstances) where possible.
- There is a need to evidence the impact of involvement, to facilitate a change in research culture which prioritises hearing the voices of different groups.
Implications for practice, theory, or policy
- Involving people with lived experience of homelessness can help researchers to identify unknown unknowns within the field of palliative care: it can validate, enhance and direct research to the intricacies of their experiences.
- The TIFFIN recommendations provide guidance for how to achieve co-production within this field in a trauma informed way.
Full paper available from:
https://journals.sagepub.com/doi/full/10.1177/02692163241259667
If you would like to record a podcast about your published (or accepted) Palliative Medicine paper, please contact Dr Amara Nwosu:
a.nwosu@lancaster.ac.uk