Joining together with patients and families in pediatrics can present challenges, particularly when it involves convincing adolescents to follow medical recommendations. There are times when less than ideal compliance to a care plan is undertaken. This can leave clinicians in a confusing situation where they may not know what to do; where they are unsure how ... Show More
Yesterday
After the PICU: Understanding Post ICU Trauma in Kids
When a child faces a life threatening illness or injury, we often assume that they have "recovered" when they leave the ICU, the hospital or graduate from follow up. For many kids and families, however, the traumatic stress of an ICU stay or a life threatening illness or injury l ... Show More
28m 28s
Aug 8
A Question of Ethics: Talking About Disability: Suffering, Quality of Life and Value Distinctions
Talking about disability in clinical encounters with parents, families, and patients can be very challenging. Decision-making around benefits and burdens of interventions and how they impact what future life for a child might be like inherently includes discussions of disability. ... Show More
31m 38s
Jul 25
Equity Actions: Equitable Healthcare for All: Addressing Disparities and Driving Change
Join James Burroughs as he sits down with Dr. Joseph L. Wright, Chief Health Equity Officer and Senior Vice President at the American Academy of Pediatrics. In this episode, they delve into the significance of providing equitable care, the journey towards achieving equity in clin ... Show More
30m 13s
Jun 2024
What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study
This episode features Richard Keagan-Bull (Faculty of Health, Science, Social Care and Education, School of Nursing, Allied and Public Health, Kingston University London, London, UK). What is already known about the topic? Deaths of people with intellectual disabilities are oft ... Show More
4m 5s
Jul 2024
Two Generations, One Shared Disease: A Conversation with Mother and Son
It’s one thing, as a parent, to deal with your own struggles, but to watch your kid go through it - to see them face obstacles and struggles can be excruciating. It often feels like the parent’s job is to shield their child from hardships. In this episode, Nora shares the story o ... Show More
35m 13s
May 6
Why Medicine Has Gone Too Far, The Problem With Getting A Diagnosis & Why Early Detection Is Not Always A Good Thing with Dr Suzanne O'Sullivan #553
Could our healthcare system be making us sicker rather than healthier? In the UK, autism diagnoses have increased by a staggering 787% between 1998 and 2018, and one in five people now has some form of mental health disorder. But what if some of our health struggles aren't diseas ... Show More
1h 50m
May 19
Should I have children? Ellie Simmonds on genetic disability diagnoses
What beliefs, hopes, worries, and questions would you have if your unborn baby was given a diagnosis of a disability? It’s something retired paralympic swimmer Ellie Simmonds has spent a lot of time considering.In this chat with Fearne, Ellie explains what she’s learnt from talki ... Show More
52m 50s